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Learn from Medical Experts

World-leading dermatomyositis physicians share their expertise and answer key questions about the disease.

Victoria Werth, MD

Professor of Dermatology

Hospital of the University of Pennsylvania

Iazsmin Bauer Ventura, MD, MSc

Director, Multidisciplinary Myositis Program

University of Chicago

Scott Elman, MD

Director of Inpatient Dermatology Services

University of Miami Health System

Harry Dao, MD

Chair, Dermatology

Loma Linda University Health

Rohit Aggarwal, MD, MS

Director, UPMC Myositis Clinic

University of Pittsburgh Medical Center

Gabriela Cobos, MD, FAAD

Director, Dermatology-
Rheumatology Program

Tufts University
Medical Center

Lisa Criscione-Schreiber, MD, MEd

Co-Director, Myositis Clinic

Duke University

Alisa Femia, MD

Director of Dermatology-Rheumatology

NYU Langone Health

John Edminister, MD

Assistant Professor of Dermatology

Wake Forest University

Anthony Fernandez, MD, PhD

Director of Medical Dermatology

Cleveland Clinic

Prateek Gandiga, MD, FACP

Senior Physician & Clinical Lead, Emory Myositis Clinic

Emory Healthcare

Daniela Ghetie, MD

Co-Director, Myositis Center

Oregon Health & Science University

Nathaniel Harris Duke University

Nathaniel Harris, MD, PhD

Co-Director, Myositis Clinic

Duke University

Michelle Min, MD, MSci

Director of Rheumatologic Dermatology

UCI Medical Center

Oluwakemi Onajin, MD, FAAD

Assistant Professor of Dermatology and Dermatopathology

University of Chicago Medical Center

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What is dermatomyositis?

Dermatomyositis is a rare autoimmune disease that causes muscle weakness and skin rashes. It occurs when the body’s immune system mistakenly attacks healthy tissue, leading to inflammation and damage. In this video series, leading physician experts provide an overview of the basics of the condition.

Why Dermatomyositis Is an Autoimmune Disease

John Edminister, MD

A dermatologist walks through how dermatomyositis occurs when the immune system mistakenly targets healthy tissue.

What Does “Dermatomyositis” Mean?

Alisa Femia, MD

A dermatologist breaks down the word “dermatomyositis” to reveal how it reflects the disease’s impact on skin, muscle, and the immune system.

Understanding the Hidden Triggers of Dermatomyositis

Scott Elman, MD

Dermatomyositis may be triggered by hidden factors like cancer or changes in the immune system. Hear a dermatologist explain which underlying malignancies  are important to watch for and how they may be driving the disease.

The Chronic Nature of Dermatomyositis

Anthony Fernandez, MD, PhD

Living with dermatomyositis means managing a long-term condition. You’ll hear from a dermatologist about what chronic illness looks like and how patients can navigate ongoing care.

Identifying the Signs & Symptoms of Dermatomyositis

Iazsmin Bauer Ventura, MD, MSc

Learn to recognize the early signs of dermatomyositis. A rheumatologist shares key symptoms to watch for and how timely diagnosis can make a difference.

Multi-Organ Inflammation in Dermatomyositis

Daniela Ghetie, MD

Beyond skin and muscle, dermatomyositis can affect internal organs. Learn how systemic inflammation can impact overall health from a rheumatologist.

Variation in Dermatomyositis Cases

Prateek Gandiga, MD, FACP

No two cases of dermatomyositis are exactly alike. A rheumatologist explains the wide range of symptoms and why individualized treatment is essential.

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What causes dermatomyositis?

Doctors don’t know the exact cause of dermatomyositis, but it’s believed to be an autoimmune condition—where the immune system mistakenly attacks healthy tissue. This may be triggered by a mix of genetic factors, infections, medications, or environmental exposures. In this section, physician experts will provide further detail on the current understanding of the causes.

Environmental, Immune and Lifestyle Triggers for Dermatomyositis

Scott Elman, MD

Learn how sunlight, immune system changes, and even certain stimulants may play a role in triggering dermatomyositis.

Genetic Predisposition for Dermatomyositis

Lisa Criscione-Schreiber, MD, MEd

Hear from a rheumatologist how genetics may influence your risk of developing dermatomyositis.

Potential Role of Environmental Factors in Dermatomyositis

Daniela Ghetie, MD

Learn about the environmental factors that may trigger or contribute to the onset of dermatomyositis.

The Immune System’s Role in Dermatomyositis

Iazsmin Bauer Ventura, MD, MSc

Your immune system usually protects you—but in dermatomyositis, it can mistakenly attack your own tissues. Learn how this breakdown happens from a rheumatologist.

Dermatomyositis Triggers: What’s Outside Your Control

Nathaniel Harris, MD, PhD

It can be tempting to blame yourself for your illness, but with dermatomyositis, many triggers are beyond your control. Learn why from a rheumatologist.

Managing Dermatomyositis When the Cause Isn’t Clear

John Edminister, MD

Because dermatomyositis has no single known cause, it’s important to focus on what comes next—getting the right care and support to manage it effectively.

The Biology Behind Triggers for Dermatomyositis

Victoria Werth, MD

Environmental and immune-related triggers are known to play a role in dermatomyositis. This dermatologist breaks down the biology behind each one to explain how they may contribute to the disease.

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How is dermatomyositis treated and what are the treatment challenges?

Dermatomyositis is typically managed with medications that reduce inflammation and calm the immune system. Treatment can be complex, as not all patients respond the same way, and some may experience side effects or need long-term care. Ongoing monitoring and a personalized approach are often needed to manage symptoms and prevent complications. Hear about these approaches from myositis experts.

How Medications Are Prioritized for Treatment of Dermatomyositis

Prateek Gandiga, MD, FACP

In this video, a rheumatologist explains how standard treatments—such as steroids and immunosuppressants—are typically used first to manage dermatomyositis. He also discusses when and why more advanced therapies may be needed if symptoms persist or become more severe.

Selecting the Right Therapy Based on Symptoms

Iazsmin Bauer Ventura, MD, MSc

Treatment for dermatomyositis often depends on which organs are affected, since what works for muscle inflammation may not be as effective for skin symptoms or lung involvement. In this video, a rheumatologist explains how doctors should tailor therapies based on symptoms and antibody profiles, and why a one-size-fits-all approach doesn’t work for this complex condition.

Treatment Based on Disease Severity

Scott Elman, MD

In this video, a leading dermatologist explains how dermatomyositis treatments are adjusted based on how mild or severe your symptoms are, so you get care that’s right for your condition, whether you’re newly diagnosed or managing long-term effects.

Long-Term View on Dermatomyositis Treatment

Lisa Criscione-Schreiber, MD, MEd

Dermatomyositis can come on quickly, but healing often takes time. In this video, a medical expert shares what long-term treatment looks like, helping you understand the road ahead and how care evolves over time.

Organ Involvement Dictates Your Treatment Regimen

Victoria Werth, MD

Dermatomyositis affects people differently—involving the skin, muscles, lungs, or other organs. In this video, a top dermatologist explains how treatment decisions are guided by which parts of the body are impacted, helping ensure each patient gets the care that fits their unique needs.

Role of Anti-Malarials in Dermatomyositis Treatment

Alisa Femia, MD

Anti-malarial medications like hydroxychloroquine can help manage skin symptoms in dermatomyositis. While few patients see full control with these alone, they’re often a first step in treatment.

Addressing Inflammation and Muscle Damage

Nathaniel Harris, MD, PhD

Getting muscle inflammation under control quickly is key to preventing long-term damage. Hear a rheumatologist explain how early and targeted treatment can protect strength and improve recovery in dermatomyositis.

Limitations of Topical Medicines in Dermatomyositis

Anthony Fernandez, MD, PhD

Topical medicines can help with skin symptoms or when someone presents with limited disease activity, but they often aren’t strong enough on their own. Hear why deeper, systemic treatments are usually needed to manage dermatomyositis more effectively.

Balancing Treatment of Inflammation with Improving Muscle Function

Daniela Ghetie, MD

In dermatomyositis, reducing inflammation is just one part of the goal—restoring muscle strength is also important. This video explains how treatments are chosen to calm the disease while helping you regain function and mobility.

Challenges in Choosing and Balancing Medications for Treating Dermatomyositis

Michelle Min, MD, MSci

Treating dermatomyositis often involves using at least two or three medications and finding the right balance can be complex. Treatment choices depend on what symptoms the patient is showing—like lung involvement linked to specific antibodies, or mild versus severe muscle disease. This video explains how doctors weigh these factors to create a personalized care plan.

Effects of Systemic Steroid Treatment in Dermatomyositis

John Edminister, MD

If dermatomyositis affects only the skin, steroids may not be needed. But when muscles are involved, stronger treatments are usually required. This video also explores long-term effects of steroids and how supplements like vitamin D can support your health during treatment.

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