Become a member to access the entire video content library

Sign up

Learn from Medical Experts

World-leading dermatomyositis physicians share their expertise and answer key questions about the disease.

Victoria Werth, MD

Professor of Dermatology

Hospital of the University of Pennsylvania

Iazsmin Bauer Ventura, MD, MSc

Director, Multidisciplinary Myositis Program

University of Chicago

Scott Elman, MD

Director of Inpatient Dermatology Services

University of Miami Health System

Harry Dao, MD

Chair, Dermatology

Loma Linda University Health

Rohit Aggarwal, MD, MS

Director, UPMC Myositis Clinic

University of Pittsburgh Medical Center

Gabriela Cobos, MD, FAAD

Director, Dermatology-
Rheumatology Program

Tufts University
Medical Center

Lisa Criscione-Schreiber, MD, MEd

Co-Director, Myositis Clinic

Duke University

Alisa Femia, MD

Director of Dermatology-Rheumatology

NYU Langone Health

John Edminister, MD

Assistant Professor of Dermatology

Wake Forest University

Anthony Fernandez, MD, PhD

Director of Medical Dermatology

Cleveland Clinic

Prateek Gandiga, MD, FACP

Senior Physician & Clinical Lead, Emory Myositis Clinic

Emory Healthcare

Daniela Ghetie, MD

Co-Director, Myositis Center

Oregon Health & Science University

Nathaniel Harris Duke University

Nathaniel Harris, MD, PhD

Co-Director, Myositis Clinic

Duke University

Michelle Min, MD, MSci

Director of Rheumatologic Dermatology

UCI Medical Center

Oluwakemi Onajin, MD, FAAD

Assistant Professor of Dermatology and Dermatopathology

University of Chicago Medical Center

Topic Dropdown
Expert Dropdown

What causes dermatomyositis?

Doctors don’t know the exact cause of dermatomyositis, but it’s believed to be an autoimmune condition—where the immune system mistakenly attacks healthy tissue. This may be triggered by a mix of genetic factors, infections, medications, or environmental exposures. In this section, physician experts will provide further detail on the current understanding of the causes.

Environmental, Immune and Lifestyle Triggers for Dermatomyositis

Scott Elman, MD

Learn how sunlight, immune system changes, and even certain stimulants may play a role in triggering dermatomyositis.

Genetic Predisposition for Dermatomyositis

Lisa Criscione-Schreiber, MD, MEd

Hear from a rheumatologist how genetics may influence your risk of developing dermatomyositis.

Potential Role of Environmental Factors in Dermatomyositis

Daniela Ghetie, MD

Learn about the environmental factors that may trigger or contribute to the onset of dermatomyositis.

The Immune System’s Role in Dermatomyositis

Iazsmin Bauer Ventura, MD, MSc

Your immune system usually protects you—but in dermatomyositis, it can mistakenly attack your own tissues. Learn how this breakdown happens from a rheumatologist.

Dermatomyositis Triggers: What’s Outside Your Control

Nathaniel Harris, MD, PhD

It can be tempting to blame yourself for your illness, but with dermatomyositis, many triggers are beyond your control. Learn why from a rheumatologist.

Managing Dermatomyositis When the Cause Isn’t Clear

John Edminister, MD

Because dermatomyositis has no single known cause, it’s important to focus on what comes next—getting the right care and support to manage it effectively.

The Biology Behind Triggers for Dermatomyositis

Victoria Werth, MD

Environmental and immune-related triggers are known to play a role in dermatomyositis. This dermatologist breaks down the biology behind each one to explain how they may contribute to the disease.

Load More

How is dermatomyositis diagnosed?

These videos explain how dermatomyositis is diagnosed through its characteristic skin rash, along with supporting blood tests, MRI scans, and sometimes skin or muscle biopsies. Early diagnosis helps guide treatment and prevent serious complications like lung involvement or long-term disability.

Variation in Diagnostic Criteria by Specialist

Scott Elman, MD

Diagnosis of dermatomyositis is often dictated by the type of specialist that a patient first sees with the disease onset. Tune in to hear the perspective of a dermatologist and how his investigations differ from rheumatologists and neurologists.

Importance of a Comprehensive Skin Exam for Diagnosis

Michelle Min, MD, MSci

Hear from a dermatologist on how a full skin exam helps identify key signs of dermatomyositis, and why a comprehensive clinical evaluation is essential due to its similarities with lupus and other autoimmune conditions.

Understanding Patient History in Dermatomyositis Diagnosis

Rohit Aggarwal, MD, MS

A detailed patient history and physical exam are essential for diagnosing dermatomyositis. Hear a rheumatologist describe how certain blood tests—like muscle enzyme levels and myositis-specific antibodies—along with EMG or nerve stimulation studies, are sometimes used to confirm DM diagnosis and rule out other conditions.

Characteristic Features of Dermatomyositis

Victoria Werth, MD

Dermatomyositis can show up in many ways on the skin—from a red, itchy scalp to papules on the hands. In this video, hear from a leading dermatologist on how she approaches diagnosis and why a full clinical exam is essential to distinguish it from other conditions.

The Role of the Patient Interview in Diagnosis

Prateek Gandiga, MD, FACP

In conjunction with a comprehensive physical exam, having an open, honest discussion with your physician about your symptoms is critical to aiding in the early diagnosis of dermatomyositis.

Rashes and Skin Lesions in Diagnosing Dermatomyositis

John Edminister, MD

In this video, a dermatologist explains how hallmark skin findings—like Gottron’s papules and the heliotrope rash—play a critical role in diagnosing dermatomyositis. Learn how a thorough skin exam can help distinguish dermatomyositis from similar autoimmune conditions, and why early recognition of these signs is key to guiding treatment.

Classic Manifestations of Dermatomyositis on the Hands, Scalp and Eyelids

Alisa Femia, MD

The hands are the telltale location of symptoms for dermatomyositis. However, a comprehensive clinical examination of all areas with high sun exposure are important for an accurate diagnosis. Watch as a dermatologist outlines her process of diagnosing patients with dermatomyositis.

Underdiagnosis of Dermatomyositis

Anthony Fernandez, MD, PhD

Reaching the right provider early is essential for an accurate dermatomyositis diagnosis. While many patients are eventually diagnosed as symptoms worsen, early recognition can lead to faster treatment and better long-term outcomes.

Malar Rash or Dermatomyositis? Why the Diagnosis Often Gets Confused

Michelle Min, MD, MSci

The classic malar rash seen in lupus can look strikingly like the heliotrope rash of dermatomyositis, leading to frequent misdiagnoses. In this video, a dermatologist breaks down the key differences in facial rash patterns.

Important Laboratory Tests for Dermatomyositis

Nathaniel Harris, MD, PhD

Blood tests like creatine kinase (CK) help detect muscle damage caused by dermatomyositis, often showing elevated levels when muscles are inflamed. Myositis-specific antibodies—such as anti-Mi-2, anti-TIF1-γ, and anti-MDA5—can not only confirm the diagnosis but also help predict symptoms like skin rash, lung involvement, or cancer risk. Learn how these tests are used for diagnosis and disease management.

Confusion in Diagnosis with a Positive ANA Test

Lisa Criscione-Schreiber, MD, MEd

Some patients with dermatomyositis may have a skin biopsy that looks like lupus and a positive ANA test, leading to confusion in diagnosis. In this video, a rheumatologist shares how she often sees these patients in her lupus clinic and helps redirect them toward the correct diagnosis and care path.

Overlap With Other Autoimmune Diseases

Nathaniel Harris, MD, PhD

While the initial diagnosis may be for another autoimmune disease, over time it becomes clear in patients that dermatomyositis is the predominant disease based on their symptoms. Hear about this in the video.

How the Telltale Signs of Dermatomyositis Manifest on Darker Skin

Oluwakemi Onajin, MD, FAAD

On darker skin, dermatomyositis rashes like the heliotrope rash may appear grayer, hyperpigmented, or subtle—not the classic purple seen on lighter skin. This video  explores what else to look for, including Gottron’s papules, scalp inflammation, and photosensitive patterns, to help avoid misdiagnosis with lupus or other conditions.

Assessing Redness of Skin On Darker Skin

Scott Elman, MD

Textbook images often show dermatomyositis rashes as purple on light skin, but that’s not always how they appear on darker skin tones. It’s important for providers and patients alike to recognize how dermatomyositis can look across all skin types to avoid missed or delayed diagnoses.

Photosensitivity as a Key Sign of Dermatomyositis

Harry Dao, MD

Patients with dermatomyositis may sometimes present with a limited set of symptoms, especially if they are being treated for another condition with medications that suppress or mask signs of dermatomyositis. However, one symptom that typically remains unaffected is photosensitivity which is often characterized by red rashes appearing on sun-exposed areas of the skin.

Load More

How does dermatomyositis affect daily life?

Living with dermatomyositis can bring challenges like fatigue, muscle weakness, and skin discomfort, but it doesn’t mean giving up your routine. With guidance from your care team, many people can safely stay active and even benefit from gentle exercise. While the journey may have ups and downs, new treatments and growing research offer hope for a better quality of life.

Effects of Dermatomyositis on Your Muscles and Movement

Nathaniel Harris, MD, PhD

While intense workouts like CrossFit or marathon training aren’t recommended after diagnosis, staying active is important. This video explains how dermatomyositis can affect movement and what to watch for as you safely return to exercise.

Exercise is Critical, but Timing Matters

Victoria Werth, MD

When muscles are inflamed early in the disease, it’s important to be cautious with activity. But starting a physical therapy routine is essential for rebuilding strength and improving outcomes. In this video, a dermatologist shares her recommended approach to safely support recovery.

Why It’s Important to be Hopeful Post-Diagnosis

Anthony Fernandez, MD, PhD

Dermatomyositis can be challenging, but it can be managed. Hear from a leading dermatologist from Cleveland Clinic about why he encourages his patients to feel hopeful and to know that with the right care, it’s a condition you can live with over time.

Staying Positive Through the Challenges of Dermatomyositis

Alisa Femia, MD

Dermatomyositis can be frustrating, especially with delays in diagnosis. But once you’re under the right care, as this dermatologist notes, treatments can help bring the disease under control so you can get back to living your life with confidence and hope.

Load More

Join the Community

Join thousands of patients, caregivers, and healthcare professionals and get unlimited access to our growing library.

Sign Up

PeerConnect

Thanks for your interest, . However, the PeerConnect feature is only available to people with DM or their care partners.

Close

PeerConnect

Thanks for your interest, . Please share a brief note on why you'd like to speak with and we'll do our best to get you connected.

Confirm your email

Look for an email in your inbox for a link to set your login password. You may ignore it if you would rather use a code emailed to you to log in.

Click the button below to explore insights from leading dermatomyositis medical experts and hear powerful stories from patients and care partners navigating life with the disease.

Go to Login

Password recovery

Enter your email, attached to this account. You will receive a notification from us if your email is in our system.

Processing

I am:

    How did you hear about us?

I have read and understand the Privacy Policy and Terms of Use for this website. I consent to communicating with Priovant Therapeutics and/or those working on its behalf via text, phone, video and/or email, including receipt of marketing communications. I understand that I may opt out of communications at anytime by emailing feedback@dermatomyositis.com.

I further understand that the videos and other content on this website are owned solely by Priovant Therapeutics. I agree that I will not record, duplicate, or share the contents of any of the videos contained in this website without Priovant Therapeutics’ express, written consent.

I confirm I am a resident of the United States and understand this website is intended only for United States residents.

This website is informational only and should not be used for individual medical advice. Always consult with your healthcare provider before starting or changing a treatment plan.