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Learn from Medical Experts

World-leading dermatomyositis physicians share their expertise and answer key questions about the disease.

Victoria Werth, MD

Professor of Dermatology

Hospital of the University of Pennsylvania

Iazsmin Bauer Ventura, MD, MSc

Director, Multidisciplinary Myositis Program

University of Chicago

Scott Elman, MD

Director of Inpatient Dermatology Services

University of Miami Health System

Harry Dao, MD

Chair, Dermatology

Loma Linda University Health

Rohit Aggarwal, MD, MS

Director, UPMC Myositis Clinic

University of Pittsburgh Medical Center

Gabriela Cobos, MD, FAAD

Director, Dermatology-
Rheumatology Program

Tufts University
Medical Center

Lisa Criscione-Schreiber, MD, MEd

Co-Director, Myositis Clinic

Duke University

Alisa Femia, MD

Director of Dermatology-Rheumatology

NYU Langone Health

John Edminister, MD

Assistant Professor of Dermatology

Wake Forest University

Anthony Fernandez, MD, PhD

Director of Medical Dermatology

Cleveland Clinic

Prateek Gandiga, MD, FACP

Senior Physician & Clinical Lead, Emory Myositis Clinic

Emory Healthcare

Daniela Ghetie, MD

Co-Director, Myositis Center

Oregon Health & Science University

Nathaniel Harris Duke University

Nathaniel Harris, MD, PhD

Co-Director, Myositis Clinic

Duke University

Michelle Min, MD, MSci

Director of Rheumatologic Dermatology

UCI Medical Center

Oluwakemi Onajin, MD, FAAD

Assistant Professor of Dermatology and Dermatopathology

University of Chicago Medical Center

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Expert Dropdown

How does dermatomyositis differ from other autoimmune diseases?

This video series explores how dermatomyositis differs from other inflammatory conditions, including its unique skin symptoms, immune system involvement, and treatment approaches—helping patients and care partners better understand what sets it apart.

Muscle Weakness in Dermatomyositis

Rohit Aggarwal, MD, MS

In this video, a rheumatologist shares the role of the immune system in causing muscle weakness, one of the primary symptoms of dermatomyositis.

Skin-Muscle-Organ Involvement in Dermatomyositis

Alisa Femia, MD

Dermatomyositis is a complex autoimmune disease that can affect the skin, muscles, and internal organs. In this video, a dermatologist explains how and why the disease can show up in different parts of the body.

Why Dermatomyositis is Frequently Misdiagnosed?

Victoria Werth, MD

Dermatomyositis is often misdiagnosed as lupus, undifferentiated connective tissue disease, or other inflammatory myopathies due to its wide range of symptoms. In this video, a leading dermatologist explains why these overlaps occur and how to tell them apart.

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How is dermatomyositis diagnosed?

These videos explain how dermatomyositis is diagnosed through its characteristic skin rash, along with supporting blood tests, MRI scans, and sometimes skin or muscle biopsies. Early diagnosis helps guide treatment and prevent serious complications like lung involvement or long-term disability.

Variation in Diagnostic Criteria by Specialist

Scott Elman, MD

Diagnosis of dermatomyositis is often dictated by the type of specialist that a patient first sees with the disease onset. Tune in to hear the perspective of a dermatologist and how his investigations differ from rheumatologists and neurologists.

Importance of a Comprehensive Skin Exam for Diagnosis

Michelle Min, MD, MSci

Hear from a dermatologist on how a full skin exam helps identify key signs of dermatomyositis, and why a comprehensive clinical evaluation is essential due to its similarities with lupus and other autoimmune conditions.

Understanding Patient History in Dermatomyositis Diagnosis

Rohit Aggarwal, MD, MS

A detailed patient history and physical exam are essential for diagnosing dermatomyositis. Hear a rheumatologist describe how certain blood tests—like muscle enzyme levels and myositis-specific antibodies—along with EMG or nerve stimulation studies, are sometimes used to confirm DM diagnosis and rule out other conditions.

Characteristic Features of Dermatomyositis

Victoria Werth, MD

Dermatomyositis can show up in many ways on the skin—from a red, itchy scalp to papules on the hands. In this video, hear from a leading dermatologist on how she approaches diagnosis and why a full clinical exam is essential to distinguish it from other conditions.

The Role of the Patient Interview in Diagnosis

Prateek Gandiga, MD, FACP

In conjunction with a comprehensive physical exam, having an open, honest discussion with your physician about your symptoms is critical to aiding in the early diagnosis of dermatomyositis.

Rashes and Skin Lesions in Diagnosing Dermatomyositis

John Edminister, MD

In this video, a dermatologist explains how hallmark skin findings—like Gottron’s papules and the heliotrope rash—play a critical role in diagnosing dermatomyositis. Learn how a thorough skin exam can help distinguish dermatomyositis from similar autoimmune conditions, and why early recognition of these signs is key to guiding treatment.

Classic Manifestations of Dermatomyositis on the Hands, Scalp and Eyelids

Alisa Femia, MD

The hands are the telltale location of symptoms for dermatomyositis. However, a comprehensive clinical examination of all areas with high sun exposure are important for an accurate diagnosis. Watch as a dermatologist outlines her process of diagnosing patients with dermatomyositis.

Underdiagnosis of Dermatomyositis

Anthony Fernandez, MD, PhD

Reaching the right provider early is essential for an accurate dermatomyositis diagnosis. While many patients are eventually diagnosed as symptoms worsen, early recognition can lead to faster treatment and better long-term outcomes.

Malar Rash or Dermatomyositis? Why the Diagnosis Often Gets Confused

Michelle Min, MD, MSci

The classic malar rash seen in lupus can look strikingly like the heliotrope rash of dermatomyositis, leading to frequent misdiagnoses. In this video, a dermatologist breaks down the key differences in facial rash patterns.

Important Laboratory Tests for Dermatomyositis

Nathaniel Harris, MD, PhD

Blood tests like creatine kinase (CK) help detect muscle damage caused by dermatomyositis, often showing elevated levels when muscles are inflamed. Myositis-specific antibodies—such as anti-Mi-2, anti-TIF1-γ, and anti-MDA5—can not only confirm the diagnosis but also help predict symptoms like skin rash, lung involvement, or cancer risk. Learn how these tests are used for diagnosis and disease management.

Confusion in Diagnosis with a Positive ANA Test

Lisa Criscione-Schreiber, MD, MEd

Some patients with dermatomyositis may have a skin biopsy that looks like lupus and a positive ANA test, leading to confusion in diagnosis. In this video, a rheumatologist shares how she often sees these patients in her lupus clinic and helps redirect them toward the correct diagnosis and care path.

Overlap With Other Autoimmune Diseases

Nathaniel Harris, MD, PhD

While the initial diagnosis may be for another autoimmune disease, over time it becomes clear in patients that dermatomyositis is the predominant disease based on their symptoms. Hear about this in the video.

How the Telltale Signs of Dermatomyositis Manifest on Darker Skin

Oluwakemi Onajin, MD, FAAD

On darker skin, dermatomyositis rashes like the heliotrope rash may appear grayer, hyperpigmented, or subtle—not the classic purple seen on lighter skin. This video  explores what else to look for, including Gottron’s papules, scalp inflammation, and photosensitive patterns, to help avoid misdiagnosis with lupus or other conditions.

Assessing Redness of Skin On Darker Skin

Scott Elman, MD

Textbook images often show dermatomyositis rashes as purple on light skin, but that’s not always how they appear on darker skin tones. It’s important for providers and patients alike to recognize how dermatomyositis can look across all skin types to avoid missed or delayed diagnoses.

Photosensitivity as a Key Sign of Dermatomyositis

Harry Dao, MD

Patients with dermatomyositis may sometimes present with a limited set of symptoms, especially if they are being treated for another condition with medications that suppress or mask signs of dermatomyositis. However, one symptom that typically remains unaffected is photosensitivity which is often characterized by red rashes appearing on sun-exposed areas of the skin.

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Other FAQs

This section answers commonly asked questions from the dermatomyositis patient community ranging from more complex medical topics to future developments in the field.

Is There a Cure for Dermatomyositis?

Prateek Gandiga, MD, FACP

While there is no known cure for dermatomyositis, Dr. Gandiga shares why there’s still hope for affected patients thanks to many new treatments and advances that are improving patient outcomes.

Does Dermatomyositis Increase My Risk for Cancer?

Anthony Fernandez, MD, PhD

Watch as Dr. Fernandez explains how dermatomyositis can sometimes be a sign of an underlying cancer. Learn why cancer screening is crucial after diagnosis and how antibody profiles may help identify cancer-associated cases.

How Can Dermatomyositis Affect My Lungs?

Rohit Aggarwal, MD, MS

With up to 40% of myositis patients developing interstitial lung disease (ILD), this leading rheumatologist stresses the importance of early screening as a critical part of the treatment journey.

What Questions Frequently Come Up in the Doctor's Office?

Nathaniel Harris, MD, PhD

Dr. Harris shares frequent questions he gets from patients, including what they can do beyond medication. While interest in supplements and anti-inflammatory diets is growing, he cautions against extreme approaches and highlights the need for more research.

Dr. Cobos Ofrece una VisiĂłn General Sobre la Dermatomyositis

Gabriela Cobos, MD, FAAD

En este video, el Dr. Cobos explica qué es la dermatomiositis, sus síntomas principales, cómo se diagnostica y las opciones actuales de tratamiento. Una guía esencial para pacientes hispanohablantes que buscan entender mejor esta enfermedad autoinmune que afecta la piel y los músculos.

What is Calcinosis Cutis?

Oluwakemi Onajin, MD, FAAD

Dr. Onajin explains how calcinosis—calcium deposits in the skin—can complicate dermatomyositis, especially in juvenile cases. These deposits are often painful, hard to remove, and signal ongoing inflammation. Learn why early detection and specialized dermatologic care are essential for managing this challenging skin issue.

What Exciting Developments Are on the Horizon in Dermatomyositis?

Lisa Criscione-Schreiber, MD, MEd

Hear as this top rheumatologist highlights promising advances in dermatomyositis research. Although FDA-approved treatments remain limited, breakthroughs in understanding of myositis are paving the way for new therapies, which have already shown success in other autoimmune diseases.

How Long Do I Have to Be on Therapy?

Harry Dao, MD

While some patients may experience rapid remission following the initiation of treatment, this is not the norm for most individuals with dermatomyositis. Dr. Dao explains why the clinical goal should be to identify strategies that minimize the burden of therapy while prioritizing improvements in quality of life. This underscores the importance of emerging therapies that offer more targeted and potentially better-tolerated options for long-term disease management.

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