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Dermatomyositis may be a rare disease, but no one needs to experience it alone

Hear stories from patients and caregivers, and learn from world-leading physicians as they share their expertise.

Meet our medical experts and explore key questions about DM

Victoria Werth, MD

Professor of Dermatology

Hospital of the University of Pennsylvania

Iazsmin Bauer Ventura, MD, MSc

Director, Multidisciplinary Myositis Program

University of Chicago

Scott Elman, MD

Director of Inpatient Dermatology Services

University of Miami Health System

Harry Dao, MD

Chair, Dermatology

Loma Linda University Health

Rohit Aggarwal, MD, MS

Director, UPMC Myositis Clinic

University of Pittsburgh Medical Center

Gabriela Cobos, MD, FAAD

Director, Dermatology-
Rheumatology Program

Tufts University
Medical Center

Lisa Criscione-Schreiber, MD, MEd

Co-Director, Myositis Clinic

Duke University

Alisa Femia, MD

Director of Dermatology-Rheumatology

NYU Langone Health

John Edminister, MD

Assistant Professor of Dermatology

Wake Forest University

Anthony Fernandez, MD, PhD

Director of Medical Dermatology

Cleveland Clinic

Prateek Gandiga, MD, FACP

Senior Physician & Clinical Lead, Emory Myositis Clinic

Emory Healthcare

Daniela Ghetie, MD

Co-Director, Myositis Center

Oregon Health & Science University

Nathaniel Harris Duke University

Nathaniel Harris, MD, PhD

Co-Director, Myositis Clinic

Duke University

Michelle Min, MD, MSci

Director of Rheumatologic Dermatology

UCI Medical Center

Oluwakemi Onajin, MD, FAAD

Assistant Professor of Dermatology and Dermatopathology

University of Chicago Medical Center

How does dermatomyositis differ from other autoimmune diseases?

What is the role of autoantibodies in dermatomyositis?

How does dermatomyositis affect daily life?

Who are the different specialists involved in dermatomyositis care?

How is dermatomyositis treated and what are the treatment challenges?

What are the new investigational therapies for dermatomyositis?

Other FAQs

Additional Resources

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Support & Community

You’re not alone. We recognize the importance of connection, education, and support for those living with dermatomyositis and related inflammatory myopathies. That’s why we proudly acknowledge the work of trusted organizations like:

The Myositis Association – a leader in patient advocacy, education, and research.

Myositis Support & Understanding (MSU) – a vibrant community offering peer support and resources for patients and caregivers.

Nori’s Fight – dedicated to raising awareness about the rare autoimmune disease dermatomyositis and promoting early detection and advancements in treatments for Anti-MDA5 Dermatomyositis and Interstitial Lung Disease.

These groups are part of the broader ecosystem of care and support. We encourage you to explore them further once you’re inside our subscriber community.

PeerConnect

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