Step into a world of dermatomyositis information, curated for you

Your space with 1,000+ others learning to manage dermatomyositis!

What you’ll find:  In-depth video interviews with the world’s leading experts in dermatomyositis and powerful patient stories that capture the lived experience of dermatomyositis.

Who it’s for:  Whether you’re living with dermatomyositis, caring for someone who is, or a healthcare provider looking for trusted information—you’re in the right place.

How to get started:  Just enter your email to unlock the full library, get helpful updates, and explore new tools.

Take a peek inside our exclusive content library

Expert Insights: Medical Perspectives on Dermatomyositis

Top rheumatologists and dermatologists share insights on:

  • Diagnosis:
    How dermatomyositis is identified and why its diagnosis is often delayed
  • Signs & Symptoms:
    What causes the rash, fatigue, and muscle weakness
  • Dermatomyositis antibodies:
    Learn about dermatomyositis subtypes
Get Expert Insights

Anthony Fernandez, PhD, MD

Cleveland Clinic

Real Stories of Living with Dermatomyositis

Personal journeys from patients living with this rare autoimmune disease, highlighting:

  • Managing symptoms:
    Fatigue, muscle weakness, and the signature skin rash
  • Daily Life:
    Managing flares, adapting routines, and emotional resilience
  • Looking Ahead:
    Advocacy, hope, and strength through community
Hear their Stories

Peter

Living with DM

Support from Dermatomyositis Care Partners

Caregivers share their experiences and advice on:

  • Emotional Support:
    Coping with the challenges of chronic illness
  • Daily Care:
    Managing mobility, medications, and appointments
  • Community Building:
    Support groups and advocacy efforts
Discover More Stories

Taylor

DM Care Partner

A resource designed for people living with DM.

Dermatomyositis may be a rare disease, but no one needs to experience it alone

Join to access insights about dermatomyositis (DM), including stories from people living with dermatomyositis and their care partners, and disease information from leading medical experts.

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What is Dermatomyositis?

Dermatomyositis, or DM, is a rare autoimmune disease that affects approximately 34,000 people living in United States.

In dermatomyositis, the body’s self-protection (immune) system mistakenly attacks all or part of the body, resulting in often severe, ongoing inflammation. This inflammation may damage many organs, including the skin, muscle, lungs, heart, and gastrointestinal system.

Join to learn more

Meet our Contributors

Each contributor offers a unique and authentic perspective, whether it’s their personal experience with dermatomyositis, caring for someone with dermatomyositis, or their medical expertise on the condition.

Medical Expert

Victoria Werth, MD

Professor of Dermatology

Hospital of the University of Pennsylvania

Care Partner

Dawn

Care Partner

Care Partner

Larry

Care Partner

Medical Expert

Oluwakemi Onajin, MD, FAAD

Assistant Professor of Dermatology and Dermatopathology

Unversity of Chicago Medical Center

Person living with DM

Elisa

Executive Director of MSU

Living with DM since 2016

Medical Expert

Rohit Aggarwal, MD, MS

Director, UPMC Myositis Clinic

University of Pittsburgh Medical Center

Person living with DM

Kim

Living with DM since 1991

Care Partner

Tim

Kim’s Care Partner

Person living with DM

Austin

Living with DM since 2023

Person living with DM

Ellie

Living with DM since 2017

Care Partner

Philip

Ellie's Care Partner

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Medical Expert

Gabriela Cobos, MD, FAAD

Director, Dermatology-Rheumatology Program

Tufts University Medical Center

Person living with DM

Aisha

Living with DM since 2022

Care Partner

Chris

Aisha's Care Partner

Person living with DM

Lindsay

Living with DM since 2023

Person living with DM

Dianne

Living with DM since 2022

Medical Expert

Nathaniel Harris, MD, PhD

Co-Director, Myositis Clinic

Duke University

Person living with DM

Melissa

Living with DM since 2020

Care Partner

Taylor

Melissa’s Care Partner

Medical Expert

Prateek Gandiga, MD, FACP

Senior Physician and Clinical Lead, Emory Myositis Clinic

Emory Healthcare

Person living with DM

Benita

Living with DM since 2020

Nemo ex quaerat sunt
Person living with DM

Jeff

Living with DM since 2019

Medical Expert

Anthony Fernandez, MD, PhD

Director of Medical Dermatology

Cleveland Clinic

Person living with DM

Aerica

Living with DM since 2023

Care Partner

Kelly

Aerica’s Care Partner

Medical Expert

Michelle S. Min, MD, MSci

Director of Rheumatologic Dermatology

UCI Medical Center

Person living with DM

Peter

Living with DM since 1992

Medical Expert

Daniela Ghetie, MD

Director, Vasculitis Center and Co-Director, Myositis Center

Oregon Health & Science University

Person living with DM

Jerry

Living with DM since 2003

Medical Expert

Alisa Femia, MD

Director of Dermatology-Rheumatology

NYU Langone Health

Person living with DM

Kaniah

Living with DM since 2007

Care Partner

Kia

Kaniah's Care Partner

Medical Expert

Lisa Criscione-Schreiber, MD, MEd

Co-Director, Myositis Clinic

Duke University

Person living with DM

Magda

Living with DM since 2019

Medical Expert

John Edminister, MD

Assistant Professor of Dermatology

Wake Forest University

Here's what people are saying about dermatomyositis.com

"Dermatomyositis.com offers real insight into life with DM. Hearing from other patients reminds me I’m not alone."

- Marilyn, living with DM

"From the start, Dermatomyositis.com felt like a powerful space to learn and connect. It shows how our journeys are unique yet deeply connected."

- Jerry, living with DM

"Dermatomyositis.com is more than information—it’s a place for shared stories and real connection. I wish I had this resource when my partner was battling DM."

- Julia, DM care partner

"Dermatomyositis.com is an interactive transparent website. It provides real life experiences to spread knowledge."

- Karen, living with DM

Additional Resources

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Support & Community

You’re not alone. We recognize the importance of connection, education, and support for those living with dermatomyositis and related inflammatory myopathies. That’s why we proudly acknowledge the work of trusted organizations like:

The Myositis Association – a leader in patient advocacy, education, and research.

Myositis Support & Understanding (MSU) – a vibrant community offering peer support and resources for patients and caregivers.

These groups are part of the broader ecosystem of care and support. We encourage you to explore them further once you’re inside our subscriber community.

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