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Your Dermatomyositis Learning Journey Starts Here

Explore the world’s largest collection of dermatomyositis (DM) resources. Learn from leading experts, hear from people living with DM and their care partners, and access the most current research and treatment insights—all in one trusted place.

What Is Dermatomyositis.com?

Expert Insights

Hear directly from top DM doctors as they break down the science, share treatment insights, and answer the questions that matter most.

Real Stories from Patients & Care Partners

Watch powerful interviews that share real-life experiences from patients and care partners navigating dermatomyositis—offering honest insights, practical advice, and hope for the journey ahead.

Connection to the Dermatomyositis Community

Get full access to our expanding content library and connect with patients and care partners who truly understand the journey.

Take a look at our exclusive content

Expert Medical Insights on Dermatomyositis

Hear directly from top dermatologists and rheumatologists as they explain how dermatomyositis is diagnosed, what drives the key symptoms, and how antibody testing can help personalize understanding and management of the disease.

Explore Medical Insights

Top dermatologists and rheumatologists explain:

Diagnosis
Understand how dermatomyositis is identified and why delays in diagnosis are common due to overlapping symptoms and limited awareness.
Signs & Symptoms
Learn what drives hallmark symptoms like rash, fatigue, and muscle weakness and how they vary across individuals.
Dermatomyositis subtypes
Explore the role of autoantibodies in defining subtypes and what they reveal about disease progression and treatment options.

People Living with Dermatomyositis

Hear powerful patient stories that bring the dermatomyositis journey to life, from managing symptoms like fatigue, muscle weakness, and skin rashes, to adapting daily routines and finding resilience. Discover how advocacy and community support provide hope for the future.

Explore Patient Stories

Hear directly from patients navigating life with dermatomyositis:

Managing Symptoms
Hear how patients and caregivers cope with fatigue, muscle weakness, and skin rashes—plus practical tips for easing daily discomfort.
Daily Life
Learn how people adapt routines, manage flares, and build emotional resilience while balancing work, relationships, and self-care.
Looking Ahead
Discover how advocacy, shared experiences, and community support help patients find strength, purpose, and hope for the future.

Care Partners Supporting Those Living with Dermatomyositis

Care partners provide essential guidance and encouragement for those living with dermatomyositis. Learn how care partners manage daily routines, medication schedules, and mobility challenges while also offering emotional support and building strong community connections.

Explore Care Partner Stories

Care partners share their experiences and strategies for supporting loved ones with dermatomyositis:

Emotional Support
Hear how care partners help their loved ones manage the emotional toll of DM while also coping with their own uncertainty, stress, and burnout.
Daily Care
Find out how care partners organize medications, assist with mobility, and navigate medical appointments and hacks to streamline these routines.
Community Building
Discover how caregivers find support groups, connect with others facing similar challenges, and become powerful advocates for their loved ones.

What People Are Saying About
Dermatomyositis.com

Our community of patients and care partners share how Dermatomyositis.com has helped them feel informed, supported, and connected.

“To see a dermatomyositis website where people are telling stories like this is very inspiring to me, and it’s led me to wanting to be a part of it.”

Jim, living with DM

“And now [we have] dermatomyositis.com. Because that’s where you can find your people…that’s where you can hear stories where you say ‘hey, I have that; hey, I’m going through that’ and know someone who is going through that based on their stories. I feel seen and I feel heard.”

Clarissa, living with DM

“I love the fact that you’re bringing both patients and doctors on the website. Having the patient stories there you don’t feel alone, and you know some of the stumbling blocks you’ll come across but also having the expertise from doctors. It’s very easy to find the videos and to search if you have a question you’re looking for from the interviews.”

Mary, living with DM

Support & Community Resources for Dermatomyositis

Dermatomyositis care extends beyond medical treatment; it’s about finding connection, education, and support. Explore trusted organizations dedicated to helping patients, care partners, and families.

The Myositis Association (TMA)

Advocacy, education, and groundbreaking research to advance care.

Myositis Support & Understanding (MSU)

A peer-driven community offering resources, support groups, and guidance for patients and caregivers.

Join the Community

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