






Step into a world of dermatomyositis information, curated for you
Your space with 1,000+ others learning to manage dermatomyositis!
What you’ll find: In-depth video interviews with the world’s leading experts in dermatomyositis and powerful patient stories that capture the lived experience of dermatomyositis.
Who it’s for: Whether you’re living with dermatomyositis, caring for someone who is, or a healthcare provider looking for trusted information—you’re in the right place.
How to get started:Â Just enter your email to unlock the full library, get helpful updates, and explore new tools.
Take a peek inside our exclusive content library
Expert Insights: Medical Perspectives on Dermatomyositis
Top rheumatologists and dermatologists share insights on:
- Diagnosis:
How dermatomyositis is identified and why its diagnosis is often delayed - Signs & Symptoms:
What causes the rash, fatigue, and muscle weakness - Dermatomyositis antibodies:
Learn about dermatomyositis subtypes
Real Stories of Living with Dermatomyositis
Personal journeys from patients living with this rare autoimmune disease, highlighting:
- Managing symptoms:
Fatigue, muscle weakness, and the signature skin rash - Daily Life:
Managing flares, adapting routines, and emotional resilience - Looking Ahead:
Advocacy, hope, and strength through community
Support from Dermatomyositis Care Partners
Caregivers share their experiences and advice on:
- Emotional Support:
Coping with the challenges of chronic illness - Daily Care:
Managing mobility, medications, and appointments - Community Building:
Support groups and advocacy efforts
A resource designed for people living with DM.
Dermatomyositis may be a rare disease, but no one needs to experience it alone
Join to access insights about dermatomyositis (DM), including stories from people living with dermatomyositis and their care partners, and disease information from leading medical experts.

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Sign Up NowWhat is Dermatomyositis?
Dermatomyositis, or DM, is a rare autoimmune disease that affects approximately 34,000 people living in United States.
In dermatomyositis, the body’s self-protection (immune) system mistakenly attacks all or part of the body, resulting in often severe, ongoing inflammation. This inflammation may damage many organs, including the skin, muscle, lungs, heart, and gastrointestinal system.
Meet our Contributors
Each contributor offers a unique and authentic perspective, whether it’s their personal experience with dermatomyositis, caring for someone with dermatomyositis, or their medical expertise on the condition.
Here's what people are saying about dermatomyositis.com
Additional Resources
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Support & Community
You’re not alone. We recognize the importance of connection, education, and support for those living with dermatomyositis and related inflammatory myopathies. That’s why we proudly acknowledge the work of trusted organizations like:
The Myositis Association – a leader in patient advocacy, education, and research.
Myositis Support & Understanding (MSU) – a vibrant community offering peer support and resources for patients and caregivers.
These groups are part of the broader ecosystem of care and support. We encourage you to explore them further once you’re inside our subscriber community.