A resource designed for people living with DM.

Dermatomyositis may be a rare disease, but no one needs to experience it alone

Join to access insights about dermatomyositis (DM), including stories from people living with DM and their care partners, and disease information from leading medical experts.

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Welcome to DERMATOMYOSITIS.com!

Step into a world of dermatomyositis information, curated for you
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Hear from people living with DM

Listen to the stories of real people living with DM as they share details about their journeys to a diagnosis, the challenges of living with DM, management strategies, the impact of the disease on their relationships and loved ones, and their hopes for their lives ahead.

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Hear from medical experts

Gain insights directly from leading medical experts, as doctors with decades of experience treating DM share clear answers to key questions about the disease.

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Hear from DM care partners

Discover a supportive community of DM care partners, who share insights and stories from their experience of caring for someone living with DM.

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Meet our Contributors

Each contributor offers a unique and authentic perspective, whether it’s their personal experience with DM, caring for someone with DM, or their medical expertise on the condition.

Person living with DM

Kim

Living with DM since 1991

Care Partner

Tim

Kim’s Care Partner

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Medical Expert

Gabriela Cobos, MD, FAAD

Director, Dermatology-Rheumatology Program

Tufts University Medical Center

Person living with DM

Aisha

Living with DM since 2022

Person living with DM

Lindsay

Living with DM since 2023

Person living with DM

Melissa

Living with DM since 2020

Care Partner

Taylor

Melissa’s Care Partner

Medical Expert

Prateek Gandiga, MD, FACP

Senior Physician and Clinical Lead, Emory Myositis Clinic

Emory Healthcare

Medical Expert

Anthony Fernandez, MD, PhD

Director of Medical Dermatology

Cleveland Clinic

Person living with DM

Aerica

Living with DM since 2023

Care Partner

Kelly

Aerica’s Care Partner

Medical Expert

Michelle S. Min, MD, MSci

Director of Rheumatologic Dermatology

UCI Medical Center

Person living with DM

Peter

Living with DM since 1992

Medical Expert

Daniela Ghetie, MD

Director, Vasculitis Center and Co-Director, Myositis Center

Oregon Health & Science University

Person living with DM

Jerry

Living with DM since 2003

Medical Expert

Alisa Femia, MD

Director of Dermatology-Rheumatology

NYU Langone Health

Person living with DM

Kaniah

Living with DM since 2007

Person living with DM

Magda

Living with DM since 2019

Additional Resources

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Support

These amazing organizations provide support, education, and community for people living with dermatomyositis and other idiopathic inflammatory myopathies!

The Myositis Association
Myositis Support & Understanding

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