Hear From Patients & Care Partners
Hear people living with DM and their care partners share their stories.
Featured Videos
Emily's complete story
Advice for care partners
Life hacks: slow down
Feeling isolated with DM
Diagnosis & Discovery
Explore stories of how patients first noticed symptoms, navigated misdiagnoses, and ultimately found answers through persistence and expert care.
Rashes and redness across the body
Severe symptoms before diagnosis
Initial diagnosis - a winding journey through allergies, knee pain, and misdirection
Living with Dermatomyositis
Hear how individuals manage everyday life with DM—from career changes and new hobbies to home care and navigating the healthcare system. These stories reveal practical life hacks, emotional resilience, and the creative ways people adapt routines to live fully with DM.
Life hacks: finding the right UPF clothing & prioritizing a healthy lifestyle
What dermatomyositis feels like - strong yet struggling
Life hacks: stress relief and daily living
Mental Health & Resilience
Hear raw, heartfelt stories from patients and care partners about the emotional impact of dermatomyositis. Their voices reveal how therapy, creative expression and inner strength help people navigate living with DM.
Balancing strength and vulnerability
Understanding and flexibility as a form of support
Importance of therapy
How Dermatomyositis Affects the Body
Understand how DM affects different parts of the body and how symptoms evolve over time.
Muscle pain in trunk and midsection
Pain from calcium deposits in dermatomyositis
A scary moment: when mobility suddenly disappeared
Advocating for Yourself & Others
Hear how patients and care partners speak up in medical settings, push for accurate diagnoses, and become powerful advocates in the DM community. These stories also highlight the importance of developing partnerships and support networks with physicians, family and friends.
Importance of a supportive doctor and partner
Life hack: learn to say "no"
Advocacy as a superpower: making the invisible visible
Complete Patient Stories
Hear extended interviews from people living with dermatomyositis as they walk through their entire story. These detailed accounts reveal the impact of DM on their lives and their resilience battling this disease.
Emily's complete story
Christy's complete story
Linda's complete story
Care Partners - Supporting Loved Ones with Dermatomyositis
Stories from care partners navigating daily life, treatment, and emotional support for those living with DM.
Khaoula's Story
Philip’s Story
Chris’s Story
Care Partners - Honoring Loved Ones Lost to Dermatomyositis
Powerful reflections from care partners who continue to advocate, educate, and share their journey after loss.
Nori's full story
Who was Nori?
Nori's dermatomyositis journey
PeerConnect
Marilyn
Living with DM since 2007
Benita
Living with DM since 2020
Kaniah
Living with DM since 2007
Peter
Living with DM since 1992
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