Hear From Patients & Care Partners
Hear people living with DM and their care partners share their stories.
Featured Videos
Mary's complete story
Advice for care partners
Life hacks: slow down
Feeling isolated with DM
Diagnosis & Discovery
Explore stories of how patients first noticed symptoms, navigated misdiagnoses, and ultimately found answers through persistence and expert care.
Diagnosed with DM at a young age
Diagnosed with DM after the birth of her son
A challenging diagnosis journey during the COVID pandemic
Living with Dermatomyositis
Hear how individuals manage everyday life with DM—from career changes and new hobbies to home care and navigating the healthcare system. These stories reveal practical life hacks, emotional resilience, and the creative ways people adapt routines to live fully with DM.
Impact of fatigue on social life
Life hacks: slow down and do hand exercises
Life hack: advocating is necessary even with good doctors
Mental Health & Resilience
Hear raw, heartfelt stories from patients and care partners about the emotional impact of dermatomyositis. Their voices reveal how therapy, creative expression and inner strength help people navigate living with DM.
Hope is a powerful tool
Brain fog and anxiety from DM
Maintaining hope with dermatomyositis
How Dermatomyositis Affects the Body
Understand how DM affects different parts of the body and how symptoms evolve over time.
Prototypical presentation of DM
The rollercoaster of symptoms with DM
Muscle pain in trunk and midsection
Advocating for Yourself & Others
Hear how patients and care partners speak up in medical settings, push for accurate diagnoses, and become powerful advocates in the DM community. These stories also highlight the importance of developing partnerships and support networks with physicians, family and friends.
The necessity of trusting the patient
Making clinicians aware of DM pain
Importance of sharing your story
Complete Patient Stories
Hear extended interviews from people living with dermatomyositis as they walk through their entire story. These detailed accounts reveal the impact of DM on their lives and their resilience battling this disease.
Mary's complete story
Abby's complete story
Melinda's complete story
Care Partners - Supporting Loved Ones with Dermatomyositis
Stories from care partners navigating daily life, treatment, and emotional support for those living with DM.
Khaoula's Story
Philip’s Story
Chris’s Story
Care Partners - Honoring Loved Ones Lost to Dermatomyositis
Powerful reflections from care partners who continue to advocate, educate, and share their journey after loss.
Nori's full story
Who was Nori?
Nori's dermatomyositis journey
PeerConnect
Marilyn
Living with DM since 2007
Benita
Living with DM since 2020
Kaniah
Living with DM since 2007
Peter
Living with DM since 1992
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