Dermatomyositis may be a rare disease, but no one needs to experience it alone

Lupus misdiagnosis and delay seeing a rheumatologist

Marilyn

Living with DM since 2007

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Learn more about Marilyn's experience living with DM

Marilyn's complete story

A partnership with the doctor is key

A poem I wrote - "Imagine"

What is missing from dermatomyositis resources

My double lung transplant

Connect with Marilyn

Austin

Living with DM since 2023

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Learn more about Austin's experience living with DM

Austin's complete story

My diagnosis journey

The struggle and emotional tool of navigating the system

Home care as a resource

Benita

Living with DM since 2020

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Learn more about Benita's experience living with DM

Benita's complete story

My diagnosis discovery with MDA5 test

The importance of support groups

What others need to understand about our pain

Advocating for myself when I had no diagnosis

Connect with Benita

Elisa

Living with DM since 2016

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Learn more about Elisa's experience living with DM

Elisa's complete story

My first symptoms and diagnosis

The transition and having the illness look invisible

I was told I wasn’t going to make it

Family support and my DM

Becoming the Executive Director of MSU

Being diagnosed as a woman of color

My muscle weakness and fatigue

Ellie

Living with DM since 2017

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Learn more about Ellie's experience living with DM

Ellie's complete story

My journey to find treatments

Having DM as an athlete

Advocate for yourself

Dianne

Living with DM since 2022

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Learn more about Dianne's experience living with DM

Dianne's complete story

Navigating the healthcare system

My journey has helped others

How DM has affected my job

My diagnosis journey: cancer and DM

A good oncologist saved my life

Jeff

Living with DM since 2019

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Learn more about Jeff's experience living with DM

Jeff's complete story

My muscle weakness and pain with DM

My DM symptoms

Magda

Living with DM since 2019

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Learn more about Magda's experience living with DM

Magda’s complete story

DM, mental health, and relationships

My other main symptoms: Skin, GI, lung

Aisha

Living with DM since 2022

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Learn more about Aisha's experience living with DM

Aisha's complete story

Aisha's hopeful message

Skin and Rash

Pain, weakness and DM

How DM has affected my life

Myositis Women of Color

Kaniah

Living with DM since 2007

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Learn more about Kaniah's experience living with DM

Kaniah’s complete story

The importance of a myositis support system

My skin with DM

Connect with Kaniah

Jerry

Living with DM since 2003

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Learn more about Jerry's experience living with DM

Jerry's full story

Importance of having the right physician and advocates

The importance of support systems and MSU

Aerica

Living with DM since 2023

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Learn more about Aerica's experience living with DM

Aerica’s complete story

Journey to my DM Diagnosis

How DM affects the scalp

Kim

Living with DM since 1991

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Learn more about Kim's experience living with DM

Kim’s complete story

My skin with DM

Lindsay

Living with DM since 2023

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Learn more about Lindsay's experience living with DM

Lindsay’s complete story

How my DM has been managed

How DM has impacted my muscles

Melissa

Living with DM since 2020

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Learn more about Melissa's experience living with DM

Melissa’s complete story

Pain and DM

Peter

Living with DM since 1992

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Learn more about Peter's experience living with DM

Peter’s complete story

Cardiac consequences of DM

Importance of a strong support team